I wanted to write about Sundays, because it is actually one of the hardest days of the week for me. We are all of the LDS faith, and our church is at 1:30 pm. I have a hard time because it is right when Carter needs to nap and have lunch. I hear ya, there are other Moms out there that struggle with that time too. Sacrament meeting generally goes well, but he has had a seizure before during the meeting and a lot of people stared. I know that people stare because they are either concerned or curious, but it makes it harder for me to keep things under control. I am now the Primary pianist, so my husband Chris has to take care of Carter during Sunday School. Lately, it doesn't seem to go so well. Carter doesn't always nap well in our arms since he is getting bigger and older, so he pretty much just gets fussy. If we make it to the last hour, Relief Society and Elders Quorum, we are lucky. I'm debating whether to let Carter go to nursery, since he is 18 months old now. I'm just not sure if I feel it's worth it or fair to make just one person take care of him for those 2 hours. Since he can't crawl or walk, I fear he would be trampled by the other children. Or that he will have seizures and they won't know what to do. As long as I can get my calling in for that one hour, and we make it to sacrament, I think we are good:) Sorry Relief Society if I don't see you much....that's just how it is. You have to adapt life to your children sometimes.
I also wanted to praise my husband a little bit in this post. He works full time making gun parts and assembles them as well as works on the machines that make the parts. He loves his job, but I know it isn't always fun to go to work. I am thankful for his hard work, and also how sweet and good he is to Carter. I think some dads can get tired or frustrated with their kids more easily than moms, especially special needs kids, but my husbands is GREAT with Carter. He loves to hold him, make him smile and laugh, and play with him. We don't have a lot of options as far as playing with Carter since he doesn't move, but we still have fun. I know Chris can't wait until he can take him on a bike ride, or go swimming again, or camping. He loves to do things outdoors, and loves his little buddy to go with him. I'm so thankful that he is good and patient with Carter, and it makes me love him even more. Having a disabled baby has brought our little family even closer, and makes us love each other even more. I love you Chris!! xoxo