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Wednesday, May 30, 2012

No More Seizures! Knock on Wood

I haven't been grateful enough or vocal enough about Carter's absence of seizures.  He has had no seizures for at least four months.  We are so happy!  I think I was quiet about it for awhile because he had a hard recovery after his tonsillectomy, then I didn't want to jinx it.  It's like we went through a few months of heck to get to this point, and it's wonderful.  Carter is sitting up great and when he feels wobbly he puts his hands out for support.  He has been able to get up from a lying done position straight up like a sit up.  He now uses things around him to help him get up or change position.  This shows he is more aware of his surroundings and his own body.  He also rocks back and forth a lot and occasionally seems to move several inches.  He must be scooting some when we aren't paying attention.  So exciting!

I chalk his absence of seizures up to a combination of the few months we did the ketogenic diet, to medicine and him just growing out of them.  It's wonderful and I am so so grateful.  He has been so aware, he looks and follows people with his eyes much better, he holds a toy more steady and shakes it around, he is constantly trying to move too.  I just love how awake he is, it's like he woke up from a dream.  He laughs again so much and smiles a lot.  I am so grateful for this sweet boy that has come back to me.  We used to call him Mr Giggles because he laughed so much, then when the seizures started up he stopped.  With his new awareness has come some of its own challenges, like his frustration at not being able to do exactly what he wants to.  But he is one of the most patient little boys I know, he is so sweet.  He loves going on walks, car rides, to the store, errands, being around people and watching them.  He loves attention and peek a boo games.  His grandma and uncles are trying to teach him to scoot so he can move independently.  We just love this little boy!

Monday, May 7, 2012


Carter's cute wheelchair finally came in- my Dad wants to call it Optimus Prime or something like that.  I picked the blue color for it, and the wheelchair techs picked all the details based on his measurements and needs.  There is a clear tray that goes in front of him as well as chest straps that criss cross to buckle him in better.  We haven't taken it anywhere yet, it isn't the easiest thing to transport.  It does fold up but certain parts have to be removed first.  I think we'll use the wheelchair mostly for church, some family events and walks.  Quick store trips we'll still use his stroller for.

Doesn't he look cute in it?

Tuesday, May 1, 2012

Baby Sister

Carter's little baby sister Sierra Maurine arrived last Wedenesday, April 25th at 2:28 p.m.  She weighed in at 8 lbs 10 oz and 20 inches long.  Perfectly healthy, she went home on Friday and we are adjusting to being a family of four.  Carter has definitely noticed her cries but doesn't seem bothered by them.  He will look at her occasionally but still not sure what he is thinking or knows.

Thanks to grandparents, Carter is getting the extra attention he needs during this time.  He has been a sweetheart lately and enjoyable to be around.