So we are going ahead with getting Carter's G Tube, we will hopefully be doing it this month. We saw the GI doctor today to see if he was a good candidate. He has not gained any weight in 4-5 months; he was in the 50th percent for height, but is now at 25%. He was about 25 percent for weight, but is not 10%. He has obviously declined, because he isn't getting enough calories or fluids. This was in a way relieving to me, to know that we are on the right path. He is no longer eating any food except some pudding. He is just drinking bottles for his 3 meals, but even that he isn't getting enough. He should drink around 30 ounces a day, and he does about 17-22. Because he is so sedentary and doesn't move much, it has kept him hydrated well enough to this point.
On Monday we are going in to have a barium study done on his insides, to see how big everything is and how it's lined up. This needs to be done before the procedure, because we are choosing to do a PEG. This is a shorter procedure, where Carter would be sedated, then they would pass the endoscope through the mouth and into the stomach. The position of the endoscope can be visualized on the outside of the patient's abdomen because it contains a powerful light source, like a flash light.
How it's done: A needle is inserted through the abdomen, visualized within the stomach by the endoscope, and a suture passed through the needle is grasped by the endoscope and pulled up through the esophagus. The suture is then tied to the end of the PEG tube that will be external, and pulled back down through the esophagus, stomach, and out through the abdominal wall. The insertion takes about 20 minutes. The tube is kept within the stomach either by a balloon on its tip (which can be deflated) or by a retention dome which is wider than the tract of the tube.
He would just be admitted for one night, and recovery would be quite quick. After around 6 weeks, they would place a button on it for less visibility and easier management. So the first while he would have a tube coming out, that we would tape to keep it away. We will update you once the surgery comes and let you know how it goes/went. Thanks for all those who have supported us, left beautiful comments here or on Facebook, or even those that just read because they care.