So I had the privilege of meeting some new friends that have a child with 1p36. It was so nice to be able to talk to someone that can really understand what I am going through. Although our children are different ages, they have been there and done that. I know every child's experience will be different, but it was still nice to talk to them. It has been a process since Carter's diagnosis of finding people that live nearby. Although the reports say that 1 in every 5-10,000 have this syndrome, I believe a lot are undiagnosed. We are so lucky to have a family close by that we can get to know. There are a couple of groups online that have helped me get in contact with other families. Some are monitored and exclusive at who they let join, so it is private. I like that.
So, I think we have decided to let Carter go to Nursery. He is 19 months old tomorrow, and we do need the break at church. They said they will train just 1 person to take care of him, so I'm excited. Plus, I'll be down the hall if anyone needs me. I don't know how aware he is of people or things, but he will probably enjoy the music at least. I will keep you all posted how he does.