LIFE

A lot has happened since I last blogged, so this might be a little dense.  We had Valentine's Day which was uneventful because of being sick, but the kids got cute Valentine's and I helped with Sierra's preschool party by having the kids decorate heart sugar cookies and play bingo.  Then we had our 7 year wedding anniversary, and we went on a date.  I got a cute eco flower bouquet and got Chris a month pass at the indoor shooting range nearby.  We were able to go on a nice date.  Sierra and I went swimming at the Clearfield Rec Center and we all visited the zoo, still a bit chilly that day.  Time sprung forward and yay, spring time!!  More walks outside and playing in the backyard.  All the kids saw the dentist, and it was the first time Sierra had x-yrays, a full thorough cleaning and fluoride, and she did it all!  I was so proud of her.  Tax return time is also great, we bought a new couch which was very needed.  Our old one was so worn out and falling apart.  We also had the carpets cleaned in most the house, got a giant banana rocking chair for Carter, and a mattress for Sierra, and mounted our TV on the wall for safety.  Sierra is now in a big girl bed which she loves!

 









We were all sick for awhile which wasn't fun- we got a stomach bug that was passed around, and then Carter got influenza from school we think.  It took him about 1 1/2 weeks to get better.  He lost 4 pounds in 2 weeks which was 10% of his body weight, so that was kind of scary.  Thank goodness for Pedialyte, his G tube and his sweet temperament!  Keaton started walking which is just wonderful!  I honestly didn't think it was going to happen as his 2nd birthday is approaching.  He still will crawl occasionally, but he is doing great!  Easter was a beautiful day, we got some cute pictures of the kids even though just Sierra and I went to Grandma's and her Easter egg hunt, since Carter was still sick and Keaton had a cold.  

Sierra started talking time once a week, which is a speech program with 5-6 centers that have games, that meets every Tuesday after preschool.  I go with her and work with her along with the speech therapists there.  Her main issues are articulation and baby talk, as well as her l's and s's.  We also got a family membership to the Tree house Museum in Ogden, it will be fun to check it out!  April has been a busy month because Sierra started swimming lessons twice a week and Carter started horse therapy in Bountiful.  I'm so glad I found a place for him, and even better, it offers scholarships!  He goes every Wednesday after school and just loves it!  It's called Hoof beats to Healing and they go to Bountiful once a week but is based in Saratoga Springs.  They use Missouri fox trotter horses that mimic a crawl in their gait.  Crawling is an essential learning skill as well as mapping for the brain because it connects both hemispheres.  So far Carter loves it!  They even let Sierra take a turn.  Jon & Jill had their first baby, a boy named Porter, my 6th nephew!  It was fun to see and hold him.

 We renewed our family membership to the zoo through Angel Hands Foundation, with a donation for them to auction.  They believe in paying it forward which is great.  Keaton has had multiple ear infections, and combined with the fact his speech is very delayed, he is getting ear tubes on the 22nd.  I'm hoping it will help him hear better if there is fluid trapped in there so he can make progress.  He also started feeding therapy at an outpatient IHC clinic because he isn't properly using his entire mouth when eating and is very picky.  They gave us a Nuk brush to use to help stimulate his mouth muscles for eating, and suggested we try licorice or slim jim's to strengthen his jaw as well.  Feeding issues usually go hand in hand with speech delays because it all involves the mouth.  They said it's good if he plays with his food and is exposed to as much variety as possible.  I had his yearly early intervention meeting today that involved a lot of questions and testing to see where he's at.  They said he throws things a lot probably because he gets distracted easily or doesn't know how things work.  We still definitely have things to work on in the speech, feeding and functional play areas.  I'm just so glad to see him walking!  At least I know he's making progress in one area.  He loves to swing outside with Sierra and go on the slide.  Right now he's getting his 2 year molars, so he isn't the happiest.  Plus we've been so busy lately he just gets dragged around with us.  We lost an aunt on the Thorup side this week quite unexpectedly.  It makes me grateful for families and all those that are in our lives.  I hope to make more time for those special people in my life and to keep involved with them.  We also had the benefit of Women's Conference and LDS General Conference this month.  Downton Abbey came to a close which was sad, but Call The Midwife is back and soon Reign and The Mindy Project:)  Also keeping my nightstand stacked with wonderful books!

Coming up:  A new niece, Keaton's ear tube surgery, Sierra's 4th birthday and a tea party with dolls: girls only!  

Things I want to do: Take a sign language class sometime and a parenting class The Incredible Years ages 2-8 which covers:  setting boundaries and appropriate discipline, setting expectations, nurturing their social/emotional needs, praise/incentives and more!

Holidays & New School, Challenges

I realized I haven't posted for like three months, so I'll try to catch up.  Thanksgiving was small for us because Chris and one of the kids were sick, I forget which one now (lol), so we stayed home and had Thanksgiving together.  Since I don't cook, we just ordered out.  It wasn't the best day ever, but I admit I am kind of a Thanksgiving scrooge.  It's just not my favorite holiday.  Carter turned 6 in December, we just celebrated with our small family since he doesn't care for parties and can't eat cake.  I decorated his wheelchair for school.  Then of course came Christmas, and we were very blessed.  Someone did the 12 days of Christmas for us which was a lot of fun to look out for, and someone dropped off 3 wrapped gifts, not marked, one for each child; and we had a secret Santa give us a gift card so we could buy presents for the kids.  I was extremely grateful because Christmas is usually a hard time of year for us financially, with no bonus or anything.  Our kids are still young so they probably wouldn't have cared, but it's fun to spoil them.  We spent Christmas Eve with the Thorup side, and Christmas day we visited both sides.  The kids were spoiled and we all had a great day.  New Years Eve was quiet, we're not the party type especially with little kids.  

2015 was a big year for us- we went to Disneyland for the first time with our kids (except poor Carter) and bought our first home.  With those changes it has also brought one more big one, and that was Carter transitioning from Utah School for the deaf and blind to the Davis district.  One of my big concerns when we moved is that the district wouldn't have what we wanted.  Jordan school district was awesome and it was hard to leave it, where we both grew up.  After looking at our home school up the street, we settled on Carter attending Kindergarten at Parkside Elementary, just 3 minutes away.  Our biggest frustration has been transportation, but finally we have everything settled (I hope).  It's a long story, but Carter was approved to attend Kindergarten all day and have transportation back and forth, since it's in his IEP.  His teacher is great and so nice, and it's great it's closer to us now.  There are 11-12 students with 1 teacher and 2-3 aides.  He seems to be adjusting well, and they got him a push walker to work with again.

I turned 30 last month on the 30th, and I was lucky to have a girls overnight trip to The Grand America Hotel in Salt Lake the weekend before.  It was so much fun and so needed!  My mom is great at putting things together, especially just us girls.  It was my mom, myself, my two sisters, and two sisters in law.  We had two adjoining rooms, had dinner at The Cheesecake Factory at City Creek, shopped, hot tubbed, took pictures of course and more shopping.  When we turn 30, my mom also gets us our own Minky Couture blanket.  Mine matches Sierra's, which she thought was fun:)

We also have a close 1p36 family to us that generously donated to us their son's old walker.  Carter was excited right away to see it and use it.  He's standing a lot now at surfaces, especially the sink and stove.  He is a bit more mobile, which is actually a little frightening.  At the same time, Keaton who is 18 months, is getting closer to walking as well.  I call them my 'twins' because they are at the same stages in so many ways.  They play with a lot of the same toys, even fighting over them.  Our biggest challenge with Carter right now is that he loves to 'hug' Keaton so much.  He will give him a great bear hug but won't let go.  It's frustrating for us because he doesn't understand 'no' and seems to feed off of Keaton's cries.  He will go for him and hug him multiple times a day, so I feel like a referee.  It's also frustrating because Keaton could get away but doesn't even try to.  Carter also loves to pull hair, and will do it on purpose to his sister.  These behavioral issues aren't huge yet, but ones I am definitely not a fan of.

We've lived in our house for over 6 months now, and probably with the winter making things harder to get out, I have felt isolated and more shut in.  I feel like we are not as involved with our families as I would like to be.  It's hard not getting the breaks or help like I used to.  Now any errand I run has to be done while Carter is at school, or I just have to deal with all 3 kids by myself.  I can't wait until Chris is done with school, so he'll be home more.  I think the winter blues have certainly kicked in.  The kids are more emotional and difficult, my patience is thin, and I am not getting that help I used to, to help refill my bucket.  This move has been hard on me, and sometimes I question it.  I'm trying to just be thankful that we got a house.  Our family is just an hour away, not states away, but still...I think what keeps me going right now is Downton Abbey (which is ending soon), reading other mom blogs, and The Bachelor.  Let's cheer for spring!

Our ward has been great with Carter and I've made a few friends, but these things take time.  I have a neighbor that is always willing to help which is wonderful.  I think sometimes we get lost or it's hard to find purpose in things, and I think that's where I'm at right now.  I have a hard time with Carter's behavioral issues or why he does things the way he does and why we can't communicate, and why it's harder for me to get things done or go anywhere, and we don't have family close etc etc.  I have hard days as a Mom, I know everybody does, but it seems like mine are more frequent.  Having a child that needs me so much while my toddler is not a great napper or sleeper and is super clingy, while having a special needs kids- it's rough.  Trying to balance it all is a skill I have not perfected yet.  Trying to find time for Carter to use his walker, while working with Sierra on preschool things (she is struggling with recognizing her name and writing it herself, among other things), while trying to find time or energy to work with Keaton on walking, eating new foods and language skills.  It's all just a lot of work, and some days it's just easier to not do it.  Motherhood is a big challenge and responsibility, but especially when your kids have additional needs.

Coming up:  Valentine's Day, our 7th wedding anniversary & a new nephew:)

Halloween fun, outings, appointments and IEP/placement!

Things have been busy since my last post, we did several fun things for fall/Halloween.  We took the kids to the zoo, the dinosaur museum in Ogden for their Halloween night which included games with prizes, and accompanied Carter on a field trip with his school to Black Hills Farm and went to our ward's trunk or treat.  The kids had a fun Halloween night trick-or-treating at my parent's house in South Jordan with the rest of their cousins.

Dinosaur Museum

 The kids got their flu shots, and Carter had his yearly eye appointment at Primary Children's.  It was a little crazy taking all three kids with me, but the doctor said he was the most attentive he had been for him yet and had excellent vision.  Carter also got fitted for new braces for his feet/ankles since they're too small.  His wheelchair is also going to be adjusted for his growth.  We also had to go back early morning to Primary Children's for more dental restoration.  Carter managed to get his spacer out with his tongue, which he could have choked on, so we had to go back in for them to put in a silver crown with the spacer attached.  This will stay in better and will help guide in the adult tooth once it comes in.  With Carter having a smaller mouth and getting lots of adult teeth fast (6 so far), and not being able to tolerate braces in the future, we'll have to keep a close eye on his teeth and how they come in.  He didn't like the effects of the anaesthesia, but as last time, as soon as we got home he was happy again.

I love this picture of Keaton, so happy!  He was even sick that day.  Keaton had his 15 month appointment and was 55% for height, 60% for weight and 50% for head.  He is still receiving physical therapy once a month and is doing great!  He just had his 6 month review and met every goal but one, and we made new ones.  Every time his therapist sees him he is improving rapidly.  Keaton is pulling up to stand at many surfaces and tall kneeling and transitioning in and out of all different positions, and feeding himself small finger foods.  The pediatrician was concerned with a few things:  that he doesn't point or wave which is a pre-language skill, and that he isn't talking other than babbling.  So we are going to have the family development specialist start coming out as well, to help Keaton with his language and even some feeding therapy.  Keaton is behind, but not that bad.  We want to work on him side-walking by furniture and even with a walking toy that's weighed down so it's slower.  He loves playing ball, tossing it back and forth with you.  He loves to crawl everywhere and is getting faster and better form.  The stinker is getting teeth so he still isn't sleeping all night.  He loves his milk and eating most things and watching his sister play and imitate him and definitely still a momma's boy and loves to cuddle!  He has quite a pair of lungs on him and screeches when he wants your attention and loves to imitate noises.  Carter and Keaton often fight over the same toy which is funny.  I love my little but big Keaton boy!

So, I had Carter's big IEP today and his 3-year placement meeting.  It was three hours long!!  Intense.  Their paperwork is now mostly online and his teacher is still new, so I think it made things take a little longer than usual.  The speech therapist and child psychologist weren't present, and over speaker phone was his physical therapist and a school representative.  Present were myself, his teacher, occupational therapist, school nurse who feeds him and another school representative.  We went over Carter's progress and testing in every area, especially vision.  Now that he has such a glowing report from his eye doctor and there was no mention of inattentiveness, they didn't have much to say on his vision.  He does still need time to process what he's looking at, but can see both near and far and to the side and tracks wonderfully.  Being seizure free and seizure med free certainly has helped with his level of awareness.  His scores were highest in social because he loves everybody!  So cute.  Sometimes it's hard to hear how low he actually is on his skills, but to me he's doing excellent!  You learn to appreciate every achievement, no matter how minor.  His physical therapist was most pleased with him, because overall he had made 11% improvement.  He's pulling up to stand, loves to walk with his push walker at school, he's all over the place!

We also had to discuss goals in each area:  pre-academics/vision, gross motor, fine motor, speech and social skills.  There has to be a math and language goal which the math is covered in fine motor and language in speech.  A few examples of his goals in vision; he will recognize his name in big-sized print when given 4-5 options with 90% accuracy, and that he'll independently pick an object out of 5 choices.  In social skills, that he'll learn to take turns playing with peers and even learn to play with them.  So far he mostly plays with adults or by himself.  In gross motor, they want him to lower himself to the floor independently 4 out of 5 times, take 3 steps between furniture, and continue to work in his gait trainer.  While he is great at standing, he has trouble getting down safely on his own.  In fine motor, that he will place 3 items into a container (also a math goal, can count as you do so) and learn to help put on his coat or shoes while using both hands.  These goals are because he is great at taking objects out of things, but not back in.  And he is good at using one hand, mostly his left, but needs to learn to use both together.  His thumb is also extended and he doesn't use it to pick things up, instead using a raking motion, so the OT suggested a splint for his thumb to pull it in to help him learn to use it.

Finally, speech/communication goals.  Since the speech therapist was absent, I talked to him over the phone to go over his goals.  Carter is showing interest in imitating noises and being so aware and interested in what's going on around him, that we want to explore his communication to help him be successful in life and school.  Obviously so far, his communication has been sorely lacking because he is non-verbal and doesn't sign or point.  So, we want to work on using pictures more for communication.  They've already done this some, but we want him to do it more consistently.  We want to find 10 words or sounds that Carter can use as approximations so he can request a desired item.  For example, if he can say 'ba' we can use that as bottle whenever we feed him, for him to identify the action.  Or 'ma' for mom, etc.  He can't say actual words yet, but we'll start with whatever noise he can say.  Then, we want him to be able to make a choice out of 4 pictures for what activity or object he wants.  Then, following reading a book or an activity, have pictures that represent that activity and ask him questions and have him answer by selecting the picture that goes with the answer.  We may look at using a communication device as well.  A lot of kiddos end up with pictures all over the house to represent an activity or object, so their non-verbal child can make choices.

The last part of the meeting was to discuss placement.  It's been three years since it was discussed, and with his vision not being a huge issue, there was really not a need for him to stay at a school that focuses primarily on vision.  Their goal is to educate the child in the least restricted environment possible, while still making sure the child is receiving what they need.  I knew this was coming, but was still sad because he's grown so much and done so well at the school for the deaf and blind.  The district doesn't like you "shopping around", so they're sending his file to the Davis district, then they'll see which school can meet his needs and let me know.  I will also likely contact our neighborhood principal to get a feel for the Kindergarten special ed program there.  They call it a functional skills class rather than special ed class.  He would go from full days to half, but they can still meet his IEP goals and speech and therapy needs there.  Of course any change this big is scary, so we'll see what happens.  They want to transition him at the beginning of the new year.  The plus side, is Carter will be able to focus more on education and not so much on vision as he has in the past few years, and he'll have more interaction with his peers.  They say it's sad to let a kid go, but great because it means they are growing and ready to move on.  We love our Carter and his wonderful progress and are so thankful for all the teachers he's had to help him along the way!

School, Family Pics & Dental Work!

We've been settling into our house, and one of the fun things we bought was a playset for the kids to play on outside.  We still need to get Carter a swing, but in the meantime we've been using hammocks for him.  Each child had their own room, but Sierra has been scared at night, so now she shares a room with Carter.  So far they both have adjusted very well.  Carter started Kindergarten at the Ogden Utah School for the Deaf and Blind campus.  He leaves at 7 (I love his driver) and gets home around 4, except Wednesdays he's home at 1:30.  Long week for a young kid.  They had school pictures last week, so I'll post those when they come in.  The school has already hosted a fun carnival and family day at Cherry Hill, both which we've missed unfortunately.  As soon as they get a swim therapist, Carter will be able to swim weekly as part of his goals.  He's built up his strength again with his walker and wearing his braces.  The teacher and class is new to him, but he seems to be doing pretty well.  They also have a library visit every week and it's all sensory which is great.  His IEP is end of this month, so I hope it goes well.

Carter saw his GI doctor in August for the year, and he was pleased with Carter's growth and health.  We checked some labs to make sure his salt and other electrolytes are fine because all he takes is Pediasure still and water, but they were all normal.  He is now completely off his seizure meds and has been seizure free for over 2 years.  He has gone from 6 to 2 meds in totality, which is awesome.
We've had fun exploring our new home area up north.  We went swimming at the Clearfield Rec Center which all the kids loved.  We also went to the zoo a few times, soaking up that sunshine while we can.

Sierra started preschool at the Head Start in Clearfield, she is doing very well so far.  She goes twice a week from 9:15-12:45.  We are working on flash cards and learning her color/shapes, numbers, letters and more.  She enjoys her teacher and being more independent.  Her teacher visits us twice a month at home for an hour to work on things, and she also has monthly reading groups and father/daughter activities.  During this little bit of free time, Keaton suddenly took off crawling on his own everywhere.  He's also pulling up to kneel and getting into things like a normal kid should.  It's nice to see him catching up.  We've had several birthday parties lately and also a nice visit to Brighton and Silver Lake.  It was a nice Sunday walk to go on.

We had family pictures on my side for the 4th time in 6 1/2 years, because the family keeps growing so fast!  Those pictures are on the right side of the blog.  I was pretty pleased with them.  We had some nice friends give us a special needs trike for Carter.  He's about tall enough to do it on his own, and Sierra loves standing in the back of it.  The grand kids got a kick out of it the other Sunday.  The older ones took turns riding it and others around on the back of it, while others chased after it.  It was like a mini gladiator race, lol.

And this is just a nice photo of my dad with Carter, he loves him so much!

Today, Carter had a dental visit at Primary Children's Hospital in Salt Lake.  We had to check in at 7:15 to Same Day Surgery, and he went back about 8:40 to receive anaesthesia.  They took xrays, properly cleaned his teeth, put sealants on, a spacer on one side and extracted a tooth on the other side.  It all took around an hour, and when I went into recovery he was kind of waking up and pretty mad.  Poor guy.  I'm sure he has terrible memories of the place, and it's been awhile since he's been there for anything major.  Once I got him home and fed and gave him Ibuprofen, he was a lot happier.  I hope I can keep his teeth cleaner this time around, especially with several permanent teeth in now.  They look so nice and clean now!

Just a shout out, a bit late, to my mom for losing 100 lbs+!  She looks great and is so happy.  

What's Coming Up:  IEP end of October, HALLOWEEN!, vision appointment...

It's Fall!!

Last night, Carter's tooth spacer came out.  Stinker!  So now he has to go back in November to have a crown with a spacer attached to his tooth.  The problem is he's so young but getting his adult teeth, and his mouth is so small.  We'll have to watch his crowns real closely for the next several years to make sure they come in properly.

Keaton is 1 & The Move

Keaton turned 1 on July 15th!  We weren't sure when we were moving, so we did his party the weekend before at the Herriman Rosecrest Splash Park.  We had cupcakes and lots of family and cousisn came to play with us.  My brother in law took pictures of Keaton which turned out adorable.  He has the greatest smile with all those teeth, and is definitely a Momma's boy.  He loves his brother and sister and playing with toys.  Carter and Keaton often want the same toy and will fight over it.  Keaton is a picky eater but is doing well with whole milk now and loves to eat puffs.  He loves to turn on his side to sleep and has to have his soft bunny or a blanket against his face to sleep.  He was 20% for height and 70% for weight at his appointment.  The shots are never easy for him, he takes a few days to recover.  We love our Keaton Thomas!

We finally got our first house a few weeks ago!  We moved from West Jordan to Clinton, Utah which is about 45 minutes away.  Getting the house was actually a very stressful experience with all the delays and last minute faxes and emails.  We had to re-arrange our moving plans several times also, but we finally got it.  Because of July 24th being a holiday, we had to move most our stuff in the garage until the house posted in our names, which ended up not happening until Tuesday instead of Monday.  So we stayed with my in laws for a couple nights, then took up the beds, rest of our stuff and food on Tuesday evening.  Our new ward helped us get our stuff into the house, so it was kind of like moving twice but so nice for all the help we got.  The kids stayed through Wednesday with my in laws so Chris and I could try to un-pack.  It's been two weeks today and we only have a few more boxes left to un-pack.  The house was built in the 60's so it is an older home and we still have work to do.  But we feel somewhat settled in and like it's starting to be home.  My priority is always to get up the wreath, pictures and curtains.  

The kids each have their own room which is so nice.  We also have a front room now and a family room, so we can keep the toys and TV in a separate room which is nice.  I have my Grandmother's piano in my front room now and it's so nice to be able to play again.  The house is a one level, over 1400 square feet.  There is a one car detached garage and a good sized yard that's completely fenced in and has sprinklers.  There are two nice trees in front and one apple tree in back.  We have space for a garden behind the garage and a covered patio area and porch.  We have just one neighbor, on our left is a storage unit which we don't mind.  The house had an outlet for a gas dryer, so I've still been hanging clothes to dry on a clothesline until the electrician comes out.  The kitchen also doesn't have a dishwasher, so I have a roll-away one that I use.  Just a few differences.  There is a crawl space under most the house that's about 4 feet tall for storage, and another fairly large storage closet which is nice.  There is no hall closet for coats and stuff which is odd.  I love the white siding, I'd like to do shutters in front on two of the windows with a matching star, and a porch swing.  We also want to get a play set and trampoline for the backyard.

Being homeowners is fun so far but busy.  I was excited the first time Chris mowed the lawn and trimmed the trees.  We have a Walmart and many other stores just a few blocks from us, so the location is nice.  We're not too far from the freeway, but are now about 45 min-an hour from family.  There's a Swig that just opened up, I want to try it:)  We lived in the upstairs of my brother in law's house and we're so thankful to him and his wife for letting us stay there so long.  It helped us stay close to family and was a great deal.  Sierra has become so close to the Thorup side of the family now since she got to play with them and see them so often.  This summer was kind of odd because I knew the move would take up a lot of our time.  We didn't go to Lake Powell this year with my family because Chris didn't have anymore time off work from Disney Land, and we also missed a day to Lagoon and weekend trip to St. George because of packing and waiting for the house.  So what's coming up?  Carter starts Kindergarten at the Ogden USDB on the 31st, and Sierra will be starting preschool with Davis Head Start soon too.  Keaton starts therapy back up today with his new therapists, so I hope he can start making some progress.  He's had a rough time with the move I think, he's been fussier and waking up more at night.  Carter sees GI tomorrow for his yearly appointment, and vision in November.  Just two more weeks of horse therapy, then we're done.  It's so far from us now we'll have to find something else for him to do.  Anyway, bye for now!

Disneyland, Preschool, Horses & Appointment

We were able to go to Disney Land in the middle of May, and had a great time.  We went with my whole family except one of my sisters and her family, and Carter.  After debating how he would do with the long drive and different sleep arrangements and lots of time in the wheelchair, we thought it best to leave him home with his Grandma.  It ended up being a wise choice because Carter had a bad cold that entire week.  We started to get it on our trip unfortunately, but I think we were too busy to notice.  Sierra loved all the rides, she said more after each one.  Ariel and It's a Small World were her favorites.  We saw a couple parades and had lunch one of the days at Ariel's Grotto, where we saw several princesses.  Sierra wore a different princess dress everyday and just ate it all up.  By the third day she was getting tired and a little difficult, and the last day there she had a lot of meltdowns.  Three is still really young to go.  Keaton was such a trooper!  He was so good in the stroller or our arms on the rides he could go on.  There were only one or two things we weren't able to do because of time- Peter Pan was closed which is my favorite.  It rained some two of the days there, thank goodness for ponchos.  We stayed just three miles away in a house that had a pool.  My parents gave us the master bedroom and bathroom since both kids slept in our room with us.  It turned out surprisingly well.  We drove Sunday (Mother's Day) to St. George to sleep overnight and break up the drive, then finished driving to California on Monday.  Had a barbecue and swam and got ready for the next day.  Tuesday was in Disney Land, Wednesday and Thursday in California Adventure and Friday in Disney Land.  Saturday we skipped the beach and drove to St. George to stay overnight again, then Sunday came home.

Upon returning home Carter seemed pretty sick, and got worse fast.  I took him to the pediatrician and he had a bad double ear infection, eye infection and cold.  He also threw up a few times.  With eye drops and antibiotics he got better pretty quick.  But soon I got really sick and Keaton too.  Then Sierra threw up a few times and got an eye infection and sore throat.  We were really sick for a couple weeks, even with antibiotics and eye drops.  It was rough.  Thankfully it was over Memorial weekend so Chris was home for four days to help.  I felt like I had just caught up on laundry from our trip then we were so sick for so long.  My sister brought banana bread, my sister in law dinner one night, my parents dinner twice and a get well basket, a cousin brought a basket of treats and toys, and my in laws brought multiple meals- it helps they live so close:)  I'm so blessed to have such loving family.  I hate seeing my kids sick, especially when there's only so much I can do.  Keaton ended up so dehydrated from his sore throat and ear infection that he had to get fluids at Primary Children's.  Little Keaton has had 3 ear infections in 2 or so months, so he is probably going to get tubes in his ears.  Poor guy inherited my ear problems.  His physical therapist moved, so he'll be getting a new one.

Carter had his last day of preschool last Thursday.  My mom and I went to his classroom with the kids to see his yearbook and talk to the teachers.  He was playing in pudding and got it everywhere!  But he loved it.  It was so nice how much they all liked him and talked about him.  They suggested some summer activities and we shared resources with the other parents.  Carter is loaning a push walker over the summer to help him keep up on his walking.  He got a glow stick, cotton candy and bouncy ball to take him.  One of the high school students who had worked with him all year also bought him a birthday gift.  So nice!  His teacher is moving on so he'll once again have a new teacher next year.  She predicted he'll be ready to mainstream soon, so we'll see.  We have been house hunting online and this Friday we start our official search.  Crossing my fingers and toes we stay close to family, but we'll see.

Carter was able to start back up with horse therapy.  Chris took him and he loved it so much he cried when he had to leave.  He was able to wear a helmet just fine this time.  Our parents and one anonymous donation helped us to get him going again.  They were surprised how big he is, it's been a few years I think.  Chris also celebrated his 29th birthday on Sunday.  We also had South Jordan Days, we had a parade and went swimming.  Then my sister's new baby boy was blessed.  11 grandchildren now for my parents, crazy.  Carter had another yearly appointment today at Shriner's.  I got to take all three kids with me, yay (sarcastic).  I can't do a stroller and wheelchair, so when I'm with all three I have to do a wagon.  It was tricky but it worked.  He had x rays of his hips and spine since last year it was curved a little.  His orthopaedic doctor said it was orthopaedically perfect.   Because he's walking and climbing things now, his spine is straight and hips where they should be.  I'm so glad!  Oh, Carter also lost his third and fourth tooth within days of each other.  He looks a bit homeless now:)

What's next?  Well, getting through the summer:) with horse therapy every week and house hunting vigorously.  Then getting Sierra ready to start preschool and Carter Kindergarten.  We'll still be working on therapy with Keaton.  I love my kids and their different personalities and needs, they challenge me to be a better person.  More loving, kind and patient.  Until next time, adieu!

Resources & Updates

Carter had his yearly appointment with Dr. Nancy Murphy, his comprehensive care doctor.  She was a bit surprised when he yanked her hair hard, which I was just about to explain to her he does.  She doesn't think he has a mean bone in his body, but she was surprised that he wouldn't let go even when asked to.  Stinker.  He's 75% in height and weight so doing well, he has chunked up a bit.  She was pleased with what he is doing and didn't need to make any changes.  I spoke with the social worker for some resources for the summer, which I'm still looking into.  Carter is registered to do horse therapy this summer, once a week.  That will be fun for him to do again.  I also just applied for HopeKids http://www.hopekids.org/  who I was told do monthly movies for the family as well as other activities, and Push To The Finish http://www.pushtothefinish.org/  where they race with your child in their wheelchair.  I think Carter would love that since he loves going fast, and it's cool because it's like they are racing even though they can't physically run.  

Carter was able to get a family zoo pass through Angel Hands this weekend, who also sponsors his baseball games.  This month we have a meeting with Wasatch Adaptive Sports http://www.wasatchadaptivesports.org  Carter will be able to bike this summer and ski this winter in Snowbird with the family.  I'm excited for these cool new activities we get to try together.  It's so nice too that they involve the family.  It's hard to do things all together since all my kids have different abilities.  I'm also looking into Camp Roger and CAST which is Catch a Special Thrill.  It's a fishing day for special needs kids and their parents.  I also heard that the Salt Lake County Parks & Recreation department has a lot of things for kids with intellectual and/or physical disabilities.  I love finding out new things and resources for Carter to get involved in.

Update on Keaton:  Keaton had his 9 month appointment and he is 30% for weight and 50% for height.  Not as heavy as I thought he was.  We are doing a swallow study in a few weeks because he gags on his solids.  He also doesn't like people food or putting things in his mouth much.  I just want to make sure he isn't aspirating and he may possibly need OT to help with feeding.  It's interesting the path Keaton has taken, some of it very similar to Carter's.  They both wore helmets, both had physical therapy and swallow studies.  I'm not saying I think Keaton has a diagnosis or anything, it's just interesting.  I think it is also personality, because both boys are good natured and laid back.  We need to get Keaton motivated to move so Carter can't keep attacking him.  Keaton is a good baby, sweet and happy.  He still wakes up once at night and fights naps, but otherwise has the cutest bluest eyes and sweetest smile.  He has been a real sweet addition to the family.

Update on Sierra:  Sierra had her 3 year appointment following her My Little Pony party over the weekend.  She is 80-85% for height and weight.  I knew she was tall because she wears a lot of 4T dresses and pants.  She is pretty close to being potty trained and is talking more.  She loves apple juice and chocolate milk and dancing to music and wearing pretty clothes and shoes.  She loves to imitate people or things and when people ask her name she now says 'I Elsa'.  Lol.  She kisses Keaton a lot and calls him 'cute baby' and gives her brothers toys when they cry or are sad.  She loves to swing and jump on the trampoline.  She is full of life and so pretty and funny.

Carter's last day of school is June 4th, his preschool graduation.  We also have Disney Land next week.  We are still house hunting but no luck yet.  This weather has been beautiful and fun to be out in.