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Tuesday, August 27, 2013

Here we go again...

Preschool started back up on Monday and Carter hasn't been able to go.  He has a cold and as usual, it goes to his lungs and he coughs a lot.  I just don't get how his body gets sick so fast.  Sierra had a little sniffle and sneezed a few times, and it jumped to him and just attacks.  It seems every year about Halloween time, he is sick until spring.  I REALLY hope this hasn't started early.  I need so badly for him to go to school.  I need those breaks and the time to nap when Sierra does.  This thyroid thing is kicking my butt, I am always so tired and never feel like I get enough sleep.  On the weekend Chris lets me sleep in once and he has to wake me up around 10 because I could just keep sleeping.  Cross your fingers that Carter gets better fast and that I get more energy.

We decided to get a van to make things easier with Carter getting bigger and heavier.  We are trying to sell a car still, but we did buy a van just over the weekend.  It's a 2002 Toyota Sienna with lower miles and good condition.  We got a good price and are now working on getting it new tires and registered and all that stuff.  It's silver and can fit 4-5 kids.  It also has a TV and VHS with DVD hook ups.  Great for kids and long drives. 
The front row is just 2 bucket seats and the back is a row that could fit 3 without car seats.  I like to drive it it's fun to have something 'new'.  Now cross your fingers we can sell the other car!

Wednesday, August 7, 2013

Appointments

Carter saw Neurology and GI yesterday, his last yearly appointments for the year (I hope).  Neurology is going to slowly taper him off one of his meds because he has been seizure free for a year and a half.  Phenobarbital can cause agitation in toddlers she said and if on for 10 years or more, can lower IQ points.  He has been really agitated lately, so I hope this helps.  GI fit us in because his button keeps popping out real easy.  Sometimes he pulls it out or moves too fast that I don't get to him in time.  Other times it seems to pop out for no reason.  The doctor said some kids will flex their stomach muscles to pop it out.  If this keeps happening, he said he could put a barb one in instead.  It would have no button and would be hard to get in or out.  They would sedate him a little to get it in so he wouldn't feel the pain.  We'll see how things go.  When it pops out, his food gets everywhere and is hard to get out of stuff.

I noticed a book that I really want to read by Keva Horry, the former wife of seven-time NBA champion Robert Horry.  She writes about her marriage and also her daughter Ashlyn that had 1p36 and has since passed away.  It came out in February and I just found out about it.  I would love to read more about other peoples' experiences.  I've recently been discouraged with having a special needs child, and I had a stranger approach me downtown last weekend.  She told me about the son she lost in 1995 from seizures and how she felt like I needed some encouragement.  It was very touching and so nice.  It's not often people know what to say or do, so it really lifted me up.